Myeloproliferative neoplasms (MPN) are chronic diseases that affect the production of blood cells in the bone marrow. These illnesses can alter the way we feel and relate to others.
Many people with MPN lead everyday lives and adjust to their illnesses. Still, others may experience bothersome symptoms or serious long-term health risks, which can lead to emotions that are difficult to manage.
Acknowledge your feelings.
Feeling fear, anxiety, sadness, or anger is normal when you have a chronic illness such as MPN. Please don't blame yourself or be ashamed of your emotions; try to express them healthily. You can talk to a family member, friend, health professional, or psychologist for support and understanding.
Learn about your disease.
The more you know about your NMP, the more prepared you will be to deal with its challenges. Find reliable, up-to-date information about your MPN type, available treatments, possible side effects, and options to improve your quality of life.
You can check sources like the National Cancer Institute, the American Cancer Society, or the International Myeloproliferative Neoplasms Foundation.
Be a good manager.
You are primarily responsible for your health and well-being, so take charge of your disease and actively participate in decisions about your treatment.
Follow your doctor's instructions, take your medications correctly, have regular checkups, and report any changes or problems you have. You can also seek second opinions or consult other specialists if necessary.
Keep a log or journal.
One way to stay organized and up to date with your illness is to keep a log or journal where you write down your doctor appointments, lab results, medications, symptoms, emotions, and other relevant information. This will help you better control your situation, detect possible complications, and communicate better with your health team.
Take care of your overall health.
Having an MPN can affect not only your physical health but also your mental and emotional health. Therefore, you must take care of all aspects of your well-being. Some steps you can take are:
Eat a balanced and varied diet, which includes fruits, vegetables, whole grains, lean proteins, and healthy fats.
Do moderate physical exercise and adapt to your abilities, always with your doctor's consent. Exercise will help improve your blood circulation, mood, and self-esteem.
Get enough rest and sleep well at night. Sleep is essential to repair the body and reduce stress.
Avoid consuming alcohol, tobacco, and other harmful substances that may harm your health or interfere with your treatment.
Practice relaxation techniques such as meditation, yoga, deep breathing, or massage. These techniques will help you reduce muscle tension, anxiety, and pain.
Enjoy your hobbies and favorite activities that make you feel good and distract you from your worries.
Maintain an optimistic attitude towards life. Although you can't change the fact that you have an MPN, you can change how you deal with it.
Join the MPN community!
You are not alone in this fight. Many people are on the same page.
You have the power to take charge of your health and well-being.