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For Healthcare Professionals

 

The Global MPN Scientifc Foundation is a foundation established in 2021 by a group of hematologists and researchers with a strong interest in MPNs.

We want to foster and coordinate international clinical and research collaborations on MPNs. By working together, we can achieve more than working alone.

​Here you will find information about who we are, what we do, and how you can join us in our mission to improve the lives of people with MPNs.

Truly independent

Focus on MPNs

Global scale Foundation

Young Scientist smiling in his office

We aim to improve clinical practice and disease monitoring in MPNs

Our aim

We aim to improve clinical practice and disease monitoring in MPNs. Numerous activities could come within this broad vision, but the initial focus is to:

  • Develop and implement global standards and guidelines for MPN diagnosis, treatment, and follow-up

  • Promote and support clinical trials and registries for MPNs

  • Facilitate and encourage basic and translational research on MPN biology and pathogenesis

  • Disseminate and exchange scientific knowledge and best practices on MPNs

  • Educate and train healthcare professionals on MPNs

  • Advocate for the needs and rights of people with MPNs

Our approach

  • We are a collaborative and inclusive foundation.

  • We work with other organizations and stakeholders who share our goals and values.

  • We respect the diversity and autonomy of each country and region.

  • We use evidence-based methods and innovative technologies to achieve our aims.

  • We are transparent and accountable in our actions and decisions.

Support for professionals

 

Being a healthcare professional who cares for people with MPNs can be challenging and rewarding. We want to support you in your work by providing you with the following:

 

  • Online platform, where you can connect with other professionals from around the world, share your experiences and insights, ask questions, and get answers.
     

  • Online library, where you can find the latest publications, guidelines, webinars, podcasts, videos, and other materials on MPNs.
     

  • Online events, where you can attend live or recorded webinars, workshops, symposia, conferences, and other activities on MPNs

Research information for patients

 

We recognize that patients are at the center of everything we do. We want to empower patients with reliable and up-to-date information about MPNs. As partners and collaborators, we also want to involve patients in our research activities. On our website, you will find the following:

  • A section dedicated to patient education, where you can learn more about MPNs, their diagnosis, treatment options, and management.
     

  • A section dedicated to patient involvement, where you can find out how you can participate in our research projects, surveys, and events

Working groups

 

Work groups are an important part of our organization's services. These groups are designed to help those with specific needs, such as pediatrics, young adults and pregnancy.

Our work groups provide a safe and supportive environment for patients to learn more about their condition and to connect with others who are also living with similar struggles.

We are currently working working on 3 groups of patients:

  • Pediatrics

  • Teens and young adults

  • Pregnancy

Scientist checking on bacterias

Grants and Funding

We are committed to supporting high-quality research on MPNs.

 

We offer grants and funding opportunities for researchers who want to conduct or participate in clinical or basic research projects on MPNs.

 

We also provide travel grants for young researchers who wish to attend international meetings or visit other institutions on MPNs.

 
 

We invite your participation!

We constantly seek new members and collaborators who share our passion for MPNs.

 

If you are a healthcare professional interested in joining us or learning more about us, don't hesitate to contact us.

Thank you for your support!

Contact Us

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