Hello, my name is Peter Löffelhardt. I have been living with polycythaemia vera, a rare type of blood cancer, for almost 30 years. This condition causes the overproduction of blood cells, which thickens the blood and increases the risk of serious complications such as blood clots, heart attacks and strokes. I was diagnosed in 1994 at the age of 50, after a routine blood test showed a high haematocrit level. My treatment has included phlebotomies, aspirin and ruxolitinib, which has helped control the disease and prevent serious problems.

 

Despite the challenges, such as side effects, itching, spleen discomfort and fear of the disease progressing to more severe conditions, I have not allowed the disease to defeat me. Instead, I have channelled my experience to help others. I am the president of the Global Myeloproliferative Neoplasms Scientific Foundation, where we support and inform those affected by polycythemia vera and other myeloproliferative neoplasms. I also collaborate with the MPN Spain Foundation to advance research and treatment.

 

Beyond my patient advocacy, I have a career in business consulting and entrepreneurship. My goal is to use my experiences and skills to improve the lives of those with similar conditions and advance the search for effective treatments. Together, we can make a difference.