Global MPN Scientific Foundation
We are here to connect Patients, Pharma, and Physicians,
and to foster collaboration, innovation, and education on MPN.
Message from our founder!
Hi, I’m Peter Löffelhardt. I’ve been living with polycythemia vera, a rare blood cancer, for nearly 30 years. This condition causes the overproduction of blood cells, thickening the blood and increasing the risk of serious complications like clots, heart attacks, and strokes. I was diagnosed in 1994 at age 50 after a routine blood test showed a high hematocrit level. My treatment has involved phlebotomies, aspirin, and ruxolitinib, which have helped manage the disease and prevent severe issues.
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Despite challenges such as side effects, itching, spleen discomfort, and the fear of progressing to more severe conditions, I haven’t let the disease defeat me. Instead, I’ve channeled my experience into helping others. I’m the president of the Global MPN Scientific Foundation, where we support and inform those affected by polycythemia vera and other myeloproliferative neoplasms. I also work with the MPN Spain Foundation to advance research and treatment.
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Beyond my patient advocacy, I have a career in business consulting and entrepreneurship. My goal is to use my experiences and skills to improve the lives of those with similar conditions and to advance the search for effective treatments. Together, we can make a difference.
Pharmaceuticals
Collaboration with pharmaceutical companies is a significant part of our mission.
Those are at the forefront of research and treatment of MPN and therefore directly impact the lives of all patients.
Where MPN patients meet!
This is your chance to join a global community that brings together all MPN groups in one platform. Here, you'll find valuable resources, connections with like-minded individuals, and access to exclusive content.
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MPN WORLD is more than just a platform; it's a space where you can learn, grow, and collaborate on projects that will propel you towards success.
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Don't wait any longer, join today and be part of something big. We look forward to seeing you in MPN WORLD!
For Healthcare Professionals
The Global MPN Scientifc Foundation is a foundation established in 2021 by a group of hematologists and researchers with a strong interest in MPNs.
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We want to foster and coordinate international clinical and research collaborations on MPNs. By working together, we can achieve more than working alone.
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​Here you will find information about who we are, what we do, and how you can join us in our mission to improve the lives of people with MPNs.
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Truly independent
Focus on MPNs
Global scale Foundation