Global MPN Scientific Foundation
We are here to connect Patients, Pharma, and Physicians,
and to foster collaboration, innovation, and education on MPN.
Our Mission
The Global MPN Scientific Foundation acknowledges the significant challenges in managing myeloproliferative neoplasms (MPN), including a lack of awareness among patients and healthcare providers, limited access to specialized testing and care, and variability in diagnostic criteria and treatment guidelines.
Additionally, there is a scarcity of effective therapies and clinical trials. The foundation, operated by dedicated volunteers, offers a wealth of unbiased, medically backed information, supports ongoing research, and helps build a strong MPN community.
They actively encourage patients, physicians, and pharmaceutical representatives to join their mission to enhance the quality of life for those affected by MPN. Together, they aim to drive progress in understanding and treating this rare group of blood cancers.
Message from our founder!
Hi, I’m Peter Löffelhardt. I’ve been living with polycythemia vera, a rare blood cancer, for nearly 30 years. This condition causes the overproduction of blood cells, thickening the blood and increasing the risk of serious complications like clots, heart attacks, and strokes. I was diagnosed in 1994 at age 50 after a routine blood test showed a high hematocrit level. My treatment has involved phlebotomies, aspirin, and ruxolitinib, which have helped manage the disease and prevent severe issues.
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Despite challenges such as side effects, itching, spleen discomfort, and the fear of progressing to more severe conditions, I haven’t let the disease defeat me. Instead, I’ve channeled my experience into helping others. I’m the president of the Global MPN Scientific Foundation, where we support and inform those affected by polycythemia vera and other myeloproliferative neoplasms. I also work with the MPN Spain Foundation to advance research and treatment.
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Beyond my patient advocacy, I have a career in business consulting and entrepreneurship. My goal is to use my experiences and skills to improve the lives of those with similar conditions and to advance the search for effective treatments. Together, we can make a difference.
