top of page
external-file_edited.png

Profile

Join date: May 22, 2025

Posts (254)

Oct 20, 20251 min
Roundtable for Patients and Families: Essential Thrombocythemia (ET)
On October 27th, 2025, at 18:00 (CEST) , the Global MPN Scientific Foundation  will host a new international roundtable dedicated to Essential Thrombocythemia (ET) , specially designed for patients, families, and advocates  who wish to share experiences , learn from experts , and connect with others  living with ET. 👉 Register now This interactive session  aims to provide a safe and supportive space  to discuss key topics such as treatment options , daily management , and emotional wellbeing...

0
0
Oct 17, 20251 min
NEW WORKSHOP on Wellbeing Project: How Writing Helps Mental Health
We are bringing back the writing workshops , now as part of the Wellbeing Project , a program designed to support the emotional and mental health of people living with MPNs. Starting this Thursday, October 23rd, 2025 at 19:00h (CET) , join a free one-week experience  within the Wellbeing Project , featuring sessions in writing, Qigong, yoga, and mindfulness . This virtual writing workshop, led by Puy Barral , creative writing facilitator, offers a trusted and inclusive space to listen, write,...

6
0
Oct 16, 20251 min
Webinar: What is imetelstat?
On October 23rd at 15:00 CET , the Global MPN Scientific Foundation will host an open-access webinar titled “What is imetelstat?”  an investigational drug for Myelofibrosis , featuring Dr. Faye Feller , MD, Executive Vice President and Chief Medical Officer at Geron . This session is designed to provide information  about imetelstat , an investigational treatment currently in development for Myelofibrosis  (MF), a type of myeloproliferative neoplasm (MPN). The presentation will focus on the...

27
0
bottom of page