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Join date: May 22, 2025

Posts (272)

Jan 15, 20261 min
MPN Voice Virtual Forum: Post-ASH Latest Updates (Registration Open!)
We are happy to share an upcoming MPN Voice virtual forum  that may be of great value for the global MPN community, focused on the latest updates following ASH . 🗓 Friday 16 January 2026 🕔 5:00–6:30 PM (GMT) 💻 Online event ✅ Registration now open This session will feature expert talks from: Prof. Claire Harrison  (Guy’s & St Thomas’ Hospital) Prof. Bethan Psaila  (University of Oxford) Dr Alesia Khan  (Leeds Teaching Hospital) A live panel Q&A  will also take place, with the option to...

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Dec 30, 20251 min
Patient Roundtable on Momelotinib
A safe space to share experiences On January 12 at 6:00 PM (CET) , the Global MPN Scientific Foundation  will host the first Patient Roundtable on Momelotinib  of the year, created as a calm, respectful and safe space  for patients and families. This session is exclusively for patients and caregivers  and will be held in Spanish with simultaneous English interpretation , allowing everyone to participate comfortably. 👉 Registration The roundtable offers an opportunity to share personal...

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Dec 29, 20252 min
January: A Journey Toward a Better Version of You
Writing, clarity and wellbeing within the Global MPN Wellbeing Project UPDATE! The Wellbeing Project is completely free for MPN patients and caregivers. Led by Puy Barral , creative writing facilitator and MPN patient , this writing workshop is part of the Global MPN Scientific Foundation Wellbeing Project  and begins in January . This is a 6-month journey  designed to support people living with MPNs in cultivating mental clarity, emotional balance and inner peace , through a gentle and...

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