Living with a myeloproliferative neoplasm is never just about blood counts. For many women, it is also about fertility questions, hormonal changes, pregnancy decisions, career pauses, family responsibilities, invisible fatigue, and emotional resilience. At the Global MPN Scientific Foundation , we believe that women with MPN deserve content that reflects their real-life experiences. That is why we have expanded our dedicated resources for women on both our website and our YouTube channel....

On February 28, 2026 , coinciding with Rare Disease Day , the Global MPN Scientific Foundation hosted the international symposium “Young & Rare: Shaping the Future Together” , an online event dedicated to children, adolescents and young adults living with myeloproliferative neoplasms (MPN) . We are very pleased to share that the event was a great success , bringing together young patients, families, healthcare professionals and members of the global MPN community from different countries. The...

A fable that humanizes illness There are stories that inform. There are stories that accompany them. And there are stories that transform. The fable of the Kingdom of Blood , written by Dr. Arnel Rodríguez, is much more than a creative story about bone marrow and the JAK2, CALR, and MPL genes. It is a profound act of generosity. It is how a patient with polycythemia vera chooses to explain his illness not from fear, but from knowledge and shared hope. Today we want to dedicate this blog to...