From January 24th to 26th, the MPN Educational Roundtables convened experts, patients, and advocacy groups from across the globe. This initiative aimed to enhance the quality of life for those with Myeloproliferative Neoplasms (MPNs), fostering collaboration to address the condition's unique challenges and advocating for holistic care solutions.
At the Netherlands roundtable, patients with Essential Thrombocythemia (ET) shared their struggles, emphasizing how extreme fatigue profoundly affects not just their physical abilities but also their mental health, social interactions, and careers. They detailed the effort required for basic tasks and the impact on their enjoyment of life and professional aspirations. For a closer look at their powerful stories and the mental health challenges they face, watch the video.
The insights shared at the MPN Educational Roundtables pave the way for a stronger, more connected community, pushing forward with the goal of improving life for MPN patients everywhere.