If you are young and have been diagnosed with an MPN, you may feel scared, angry, confused, or alone. MPNs are rare blood cancers that affect the bone marrow and the production of blood cells. Many resources and support options are available to help you cope with this serious challenge.
One of the first things you may experience is a range of emotions, such as shock, denial, sadness, anxiety, or guilt. These feelings are normal and valid. You have the right to express them and to seek help if they become overwhelming. You may also have questions about your diagnosis, treatment, prognosis, and future. Paying attention to your body and communicating with your medical team is essential. They can provide you with accurate information and guidance on how to manage your condition.
Another aspect of living with an MPN is how it affects your relationships with family and friends. You may feel isolated or misunderstood by some of them or worry about burdening them with your problems. On the other hand, some of them are very supportive and caring. It can help confide in good friends who listen to you and offer emotional support. You may also want to join a support group or an online community to connect with other young people with an MPN or a similar condition.
Finally, having an MPN does not mean abandoning your dreams and goals. Depending on your symptoms and treatment, you can still lead an everyday life as possible. You can still attend school, work, have hobbies and interests, and enjoy social activities. Of course, there may be times when you need to rest or adjust your plans but don't let your MPN define who you are or what you can do. You are more than your diagnosis.
Living with an MPN as a young person can be challenging, but you don't have to face it alone. There are many ways to cope and to find support and hope. If you would like to learn more about MPNs or talk to someone who has had a similar experience, please get in touch with us at info@gmpnsf.org.