Videos from the Webinar for Rare Disease Day: Exploring the Prevalence of MPNs Worldwide
- Global Mpn Scientific Foundation
- Apr 3
- 1 min read
On the occasion of Rare Disease Day (February 28th, 2025), the Global MPN Scientific Foundation hosted a special virtual event highlighting the prevalence of Myeloproliferative Neoplasms (MPNs) both globally and in Spain.
Content guide
Understanding the Classification of Rare Diseases
The session featured Dr. Rafael Marcos Gragera, epidemiologist at the Catalan Institute of Oncology (ICO) in Girona, who offered valuable insights on how MPNs are diagnosed and recorded as rare diseases. In Part 1, Dr. Gragera introduces the topic and explains how rare conditions like MPNs are classified and monitored through national cancer registries.
Watch more in MPN World
💡 You can now watch Part 2 and access the full webinar series, free and easily, on our secure patient platform: 🔗 mpnworld.org
This session was made possible thanks to the collaboration of patients, professionals, and advocates committed to advancing awareness around rare hematological diseases. Thank you to all who participated and made the conversation so impactful.
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