Absolutely success MPN LATAM roundtables for the Latin American community

Thank you to the Latin American patient community for your trust, your voice and your commitment

From the Global MPN Scientific Foundation through MPN LATAM, we would like to express our sincere gratitude to everyone across Latin America who has taken part in the round tables and dialogue spaces, sharing their experiences with myeloproliferative neoplasms (MPN) with remarkable openness and generosity.

Throughout this week, patients and family members from different Latin American countries have created an essential space for conversation, helping us understand, from real life, what it truly means to live with an MPN in very different healthcare settings.

For our Foundation, whose work is grounded in collaboration between patients, healthcare professionals and industry, these conversations represent a fundamental basis for moving forward towards more equitable, realistic and truly people centered solutions.

Many of the stories we have heard are deeply complex. They do not only speak about symptoms, diagnoses or treatments, but also about everyday life and the structural realities that shape the daily experiences of people living with MPN across the region.

We would like to especially acknowledge the courage of those who have shared very difficult personal situations, marked by uncertainty, limited resources and the feeling of facing a little known disease alone.

Their openness not only helps other people living with MPN, but also provides an essential perspective for all stakeholders involved in improving care.

Throughout the conversations, three major challenges have repeatedly emerged and deserve urgent international attention.

First, the shortage of physicians with specific expertise in myeloproliferative neoplasms. In many countries, access to specialists experienced in MPN is very limited, leading to delays in diagnosis, difficulties in clinical decision making and significant uncertainty for patients and families.

Second, the lack of reliable and accessible information about MPN. Many participants shared that after diagnosis, they struggle to find clear materials, resources in their own language, or safe spaces to ask questions and receive guidance. This gap directly affects their ability to understand their condition and to actively participate in their care.

And, most critically, the lack of consistent access to essential medicines for the treatment of MPN. In many countries, irregular supply, the unavailability of certain therapies and funding limitations create real barriers to treatment continuity and patient stability.

These challenges are not isolated cases. They reflect a structural reality that must be made visible in international forums where decisions are made.

At the Global MPN Scientific Foundation, we firmly believe that improving the lives of people living with MPN is only possible through coordinated and collaborative action.

The voices of patients from Latin America are crucial in helping physicians, researchers, policymakers and industry understand where the true gaps lie and how solutions can be designed to have real impact across different healthcare systems.

These round tables have not only been spaces for exchange. They have been an opportunity to build bridges between very different realities, united by shared challenges.

Once again, thank you to the Latin American patient community for your trust, your generosity and your essential contribution to advancing more equitable, better informed and truly global care for people living with myeloproliferative neoplasms.

🌍 This is what the Global MPN Family is about: connection, learning, and support across borders. 

To keep offering webinars and patient-focused spaces globally, we rely on community support.

Follow and support the MPN LATAM community : https://www.mpn-latinoamerica.com/

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