Video | Roundtable with Essential Thrombocythemia (ET) Patients

The Global MPN Scientific Foundation hosted a special roundtable exclusively for patients and caregivers living with Essential Thrombocythemia (ET).

This session created a safe and supportive space for open dialogue. Participants shared their personal experiences, discussed the daily challenges of living with ET, and exchanged practical strategies to manage symptoms and improve quality of life.

It was a powerful and inspiring conversation that reminded us of the importance of patient connection in rare diseases.

The full video is now available on our private patient platform: MPN World 

If you’re not a patient or caregiver, please contact us at info@gmpnsf.org.

At the Global MPN Scientific Foundation, we are committed to connecting the 3Ps — Patients, Physicians, and Pharma — to build a stronger path forward for the MPN community.