Save the Date: MPN Journeys – Young Voices Meet Long-Term Experience
- 12 minutes ago
- 1 min read
A space to connect questions, experience and community
We are excited to announce a new webinar organized by the Global MPN Scientific Foundation in collaboration with Odd Blood Club.
This session is designed to bring together young MPN patients and patients with long-term experience, creating a space where real questions can be shared openly.
What would you ask someone who has been living with an MPN for more than 20 years? Register and ask!
This webinar invites younger patients to ask, listen, and learn from those who have been navigating this journey over time. It is an opportunity to share experiences, gain perspective, and feel supported within the community.
For this webinar, we’ll have a PV patient who has been living with this condition for more than 35 years. Also, another MPN patient has been diagnosed since 2010 and has two children. It’s going to be very helpful to listen to everyone, and others stories can help us!
At the same time, it is important to remember that this session reflects personal experiences, and any medical questions or decisions should always be discussed with your healthcare team.
📅 April 25th, 2026
🕕 2 PM (CEST)
This webinar is part of a meaningful collaboration with Odd Blood Club, a project focused on connecting and supporting young people living with MPNs.
Because sometimes, the most valuable insights come from those who have already walked part of the path. 🌍