Roundtables for Patients Are Back: A Space to Talk and Share About MPNs

At the Global MPN Scientific Foundation, we believe that access to information is essential, but having a space to talk, listen, and share experiences with others living with myeloproliferative neoplasms (MPNs) is just as important.

For this reason, we are bringing back our patient roundtable meetings, an open space designed to discuss the questions, concerns, and experiences that often arise in daily life with essential thrombocythemia, polycythemia vera, or myelofibrosis.

These roundtables are participatory sessions where patients and caregivers can share their thoughts, ask questions, and listen to others who may be going through similar situations.

During these conversations, participants often reflect on topics such as:

• symptoms and their impact on daily life

• experiences with treatments

• managing uncertainty

• the importance of reliable information and community support

The goal is not to provide individual medical advice, but to create a respectful space for dialogue, connection, and shared understanding.

Talking with others who understand the experience of living with an MPN can help people feel less alone, gain new perspectives, and better understand their own journey.

These roundtables encourage open conversations where patients can exchange experiences, concerns, and reflections, creating a supportive environment within the MPN community.

📆 Date: Monday, March 30, 2026

🕘 Time: 6:30PM CET

💻 Online | Spanish / translation into different languages- (One week later available in our Youtube channel in English language)

The patient roundtables are part of the ongoing commitment of the Global MPN Scientific Foundation to create spaces that promote connection, information, and support within the international MPN community.

Patients and caregivers are warmly invited to join these sessions and take part in a conversation centered on the lived experience of people affected by these conditions.

✨ We invite you to join our upcoming roundtables and share your voice with the community.

If you would like to continue learning and connecting with others living with MPN, we invite you to explore the initiatives of the Global MPN Scientific Foundation.

📰 Subscribe to our newsletter to receive updates about research, webinars and community.

📝 Register for MPN JournalTrack your symptoms and treatment experience while contributing anonymously to a better understanding of life with MPN.

🌿 Explore the MPN Wellbeing ProjectA program designed to support quality of life through complementary practices that may help address symptoms and treatment side effects.

💬 Join our international WhatsApp patient groupsConnect with people living with MPN around the world and share experiences in a supportive community.

❤️ Support the Global MPN Scientific Foundation, Donations help expand education programs, international collaborations, and patient resources worldwide.

Together we continue building a stronger global network for people living with myeloproliferative neoplasms.