Myelofibrosis Day: Voices of Strength from Our Global MPN Family

Every year, on 26 November, the global MPN community comes together to honour Myelofibrosis Day. At the Global MPN Scientific Foundation, we join this day with a clear purpose: to listen, to connect and to give voice to the people behind the diagnosis.

This initiative was originally created by the Asociación Civil Linfomas, Mielodisplasias y Mielofibrosis de Argentina (ACLA) and has since grown into an international movement that brings visibility, education and support to people living with Myelofibrosis (MF) around the world.

This year, we wanted Myelofibrosis Day to be shaped directly by the community it represents.So we invited members of our official private groups, including MPN World and our dedicated Myelofibrosis space, to share a short, hopeful sentence describing how they navigate life with MF.

The response was deeply moving. Patients sent messages from different countries and backgrounds, creating a powerful collective expression of resilience, honesty and strength.

Messages and Voices from Our Myelofibrosis Community

Swipe to discover every inspiring phrase, written by Myelofibrosis patients from our global community.

A Message for the World

These voices remind us of a simple truth: a diagnosis does not define a person, and no one should face Myelofibrosis alone.

On this Myelofibrosis Day, we honour every patient who shared their words and every member of our community who finds strength in connection.

Join Our Private MPN Community

If you live with an MPN or care for someone who does, we invite you to join:

🌍 MPN World – the global private community for patients and caregivers

❤️ The dedicated Myelofibrosis group – a safe, supportive space for shared experiences and connection

These communities are secure, moderated and filled with people who truly understand the challenges of living with an MPN.