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MPN Journal: New Tracker Tool Created by Patients for Patients

The MPN Journal is a free and easy-to-use online tool created to help people living with Myeloproliferative Neoplasms (MPNs). You can track your symptoms, medications, side effects, and lifestyle habits — all in one place.


It was created by John Hoogland, Dolf van den Berg, and Remco van Haaren — all MPN patients themselves — in collaboration with the Global MPN Scientific Foundation (GMPNSF).


MPN Journal tracker for MPN Patients

Content guide



Why use it?

Because understanding what affects your symptoms can make a real difference in your daily life.


One patient discovered that regular physical activity helped him completely reduce his fatigue. Other users have noticed how stress, nutrition, or treatments influence their wellbeing.


You can also help improve care for others — the platform collects anonymous data to identify patterns and support future research.


What’s new?

Thanks to user feedback and the latest updates, you can now also:

  • Track doctor appointments

  • Add your country of treatment

  • Record use of anticoagulants and statins

  • Log menstrual or menopause symptoms

  • Enter smoking habits and height (to calculate BMI)


All of this helps create a better understanding of how different factors relate to symptoms.


MPN Journal
Source: Website MPN Journal

Easy to access

  • No app needed

  • Use it on your phone, tablet, or computer

  • Available in 11 languages including English, Spanish, German, French, and more

  • Fully anonymous and free


What’s the goal?

We want thousands of patients to use the journal to:

  • Take control of their MPN journey

  • Find useful correlations between habits and symptoms

  • Share anonymous data that helps improve MPN research and care

  • Increase doctor and researcher involvement


Try it now

Visit MPN Journal to start using the journal today. It’s simple, private, and made for people like you — by people like you.

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