At the Global MPN Scientific Foundation, we are committed to amplifying the voices of those living with Myeloproliferative Neoplasms (MPNs). As part of our MPN Hope series, we are honored to share the inspiring testimony of Vanesa, a patient diagnosed with Primary Myelofibrosis (MF).
Vanesa first learned about her condition during a routine gynecological check-up. Like many MPN patients, her diagnosis came unexpectedly, altering her perception of health and daily life. From the first symptoms of fatigue and high platelet levels to navigating multiple consultations and medical tests, Vanesa shares the emotional and physical challenges of receiving an MPN diagnosis.
In her testimony, Vanesa highlights the importance of education and adaptation, explaining how she initially feared the impact of her diagnosis on her personal and professional life. Over time, she has made lifestyle adjustments, such as moderating physical activity and prioritizing mental well-being, while maintaining stability in her career and family life.
For those interested in gaining a deeper understanding of how to manage the challenges of living with MPN, we invite you to register for MPN World. This platform offers a wealth of resources, including patient testimonies, expert insights, and a supportive community focused on improving the lives of those affected by MPNs.
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