From January 24th to 26th, the MPN Educational Roundtables united experts, associations, and patients across more than seven countries to focus on improving the quality of life for those living with Myeloproliferative Neoplasms (MPNs). This gathering aimed to address the unique needs of MPN patients, showcasing a collaborative effort among healthcare professionals, patients, and advocacy groups to tackle the challenges within different health systems and provide holistic care approaches.
The event started with a spotlight on France, featuring Karin Tourmente, president of Vivre Avec une NMP, and MPN patients sharing profound thoughts on quality of life. Karin Tourmente, highlighted the critical importance of encompassing physical, mental, and emotional well-being in MPN care. Tourmente shared her personal journey, underlining the necessity for a comprehensive treatment model that goes beyond conventional medicine. This discussion also shone a light on the "Septembre Rouge" project, emphasizing the power of community support and awareness in managing MPN challenges. Watch the full roundtable from France!
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As the roundtable discussions concluded, it was evident that the path to managing MPN involves more than just medical interventions; it requires a concerted effort to support the holistic well-being of patients. The insights gained from this event underscore the need for an integrated care approach that includes not only medical treatments but also psychological support and community engagement.Â
The MPN Educational Roundtables have set the stage for a more interconnected and supportive MPN community, striving towards a better quality of life for patients worldwide.