GMPNSF joins the international Rare Disease Day movement to give a stronger voice to MPN patients

🌍 A global milestone for the MPN community

The Global MPN Scientific Foundation is proud to share an important international milestone: our CAYAs Symposium “Young & Rare: Shaping the Future Together” has been officially published on the Rare Disease Day international platform, coordinated by EURORDIS.

This recognition confirms our commitment to working globally and to creating new international spaces where people living with MPNs can raise their voices and be heard worldwide.

Giving young MPN patients a global voice on Rare Disease Day

On February 28, 2026, as part of Rare Disease Day, we will host the international CAYAs Symposium for children, teenagers and young adults living with MPNs, together with families and caregivers.

Register here!

Rare Disease Day is coordinated by EURORDIS in collaboration with more than 70 national patient organisations, and is a key global movement for awareness, equity and access to care.