On September 28th, 2023, from 12:00 to 13:15 (CEST), AOP Health will host a Hybrid session titled "European Rare Disease Research in Crisis? An All-Hands Approach to Secure Innovation" as part of the European Health Forum Gastein 2023.
Peter Loffelhardt, President and Founder of Global MPN Scientific Foundation, will moderate the event, and his perspective as a PV patient with a rare disease will be significant. Global MPN Scientific Foundation takes immense pride in our international involvement, being a part of this European Union event, and representing the MPN community and rare diseases.
About the session
The event, organized by AOP Health, sets out to challenge biases, breakdown barriers, and initiate a lively discourse amongst stakeholders vested in the Research and Development (R&D) of therapies for rare diseases across Europe. Central themes include the functionality and contributions of European rare disease research, its appeal compared to other regions, and its pivotal role in providing hope and transformative treatments to those battling rare diseases.
For more details about this in English session, visit: EHFG 2023 - European Rare Disease Research in Crisis
As mentioned earlier, Peter Löffelhardt, President and Founder of Global MPN Scientific Foundation, will preside over the discussions. Let’s introduce the distinguished speakers, individuals of profound expertise and experience, ready to contribute to this critical dialogue.
Susanne Greber-Platzer, Senior Supervisor, Medical University of Vienna
Daria Julkowska, Scientific Coordinator, European Joint Programme on Rare Diseases
Alexander Natz, Secretary General, EUCOPE
Pernille Weiss, MEP, The European People's Party Group
Advancing Rare Disease Research: Our Global Commitment
The session promises to be a significant step towards better understanding and collaboration within the rare disease landscape. By uniting key stakeholders and fostering impactful discussions, EHFG 2023 is set to propel the field of rare disease research towards a more patient-centric and innovative future.
In conclusion, we take great pride in our international engagement through the Global MPN Scientific Foundation. Being an integral part of this European Union event allows us to stand as advocates for the MPN community and rare diseases on a global stage.
Join us for this special session featuring Peter where you can actively participate. Have your questions and thoughts ready! This is a space for open dialogue and collaboration.