Biblioteca de vídeos de GlobalMPN

This is the first episode of the video series titled "Introduction to GMPNSF". Peter Loffelhardt, president and founder of the Foundation and introduces himself to all of you so that you can get to know him a little better.

This is the second episode of the video series titled "Introduction to GMPNSF". Peter Loffelhardt, explains the current and future projects that are being carried out by the Foundation.

This is the third episode of the video series titled "Introduction to GMPNSF". Peter Loffelhardt, explains the newsletter series that will come to you if you subscribe.

This is the fourth episode of the video series titled "Introduction to GMPNSF". Peter Loffelhardt, explains how our newsletter works and how the MPN community can benefit from the educational content we offer.

In the inaugural video of the "Wall of Hope" series, Peter Loffelhardt, the president and founder of the Global MPN Scientific Foundation, extends a warm introduction. He introduces himself as a PV (Polycythemia Vera) patient, highlighting his deep connection to the cause. With a rich history in MPN advocacy, Peter Loffelhardt reveals his pivotal role in founding various MPN organizations, including MPN Advocates Network, MPN Switzerland, MPN Spain, and HOPOS Switzerland.

Continuing the second video of the "Wall of Hope" series, Peter Loffelhardt, explains an illuminating overview of the Wall of Hope initiative. Originating approximately a year ago to coincide with MPN World Awareness Day in 2022, the Wall of Hope serves as is a powerful embodiment of the collective strength, resilience, and unity within the MPN community. Its fundamental purpose is to provide a prominent platform where individuals actively engaged in the MPN world can openly share their personal stories, utilizing photos, videos, or texts. These narratives serve as a poignant reminder to every member that their journey is not solitary, imbuing them with the capacity to approach life positively and optimistically, even in the face of the challenges presented by the disease.

In the third compelling video of the "Wall of Hope" series, Peter Loffelhardt passionately discusses the profound impact of Wall of Hope publications on the MPN community. He explains that the contributions of the MPN community are the heartbeat of the GMPNSF vibrant community, actively building resilience and awareness about MPNs. Whether it’s a physician offering solutions or a pharmaceutical industry insider sharing progress, their involvement echoes far and wide. The Wall of Hope transforms into a nexus of camaraderie, uniting patients, medical practitioners, and pharmaceutical experts. This collective spirit nurtures research funding and support, fueling the evolution of MPN treatments and therapies.

Discover the transformative power of the "Wall of Hope" in the fourth captivating video of this series, as Peter Loffelhardt illuminates how the MPN community can reap the rewards of posting on this platform. The Global MPNSF relentless efforts to amplify the patient's voice in the pharmaceutical industry are yielding promising results. Over the next three to five years, a wealth of new treatments will emerge, spanning myelofibrosis, PV, and ET. This influx will empower physicians with a range of treatment options, tailored to each patient's unique conditions. A brighter horizon awaits, a testament to our united endeavors. Remember, together, we have the capacity to raise awareness, forge a supportive network, and drive transformational change.

In this introductory video of the series, the Global MPNSF collaborates with Prof. Dominik Wolf to shed light on MPNs. Prof. Wolf emphasizes the importance of treating physicians and patient advocacy groups, highlighting their role in providing vital information and support to those facing MPNs. Prof. Wolf explains that these groups foster exchanges between individuals facing similar health challenges, encouraging participation in patient information days and engaging with online platforms specific to MPNs. Through these interactions, patients can not only connect with fellow patients but also gain insights from healthcare professionals associated with these advocacy groups. He stresses the importance of seeking assistance from a multidisciplinary treatment team, including professionals like psycho oncologists, to cope effectively with the emotional and practical aspects of an MPN diagnosis.